Category Archives: Multiple Sclerosis Resources

So, now what?

It’s been a month since I’d lost Rick to the unexpected heart attack on Christmas morning.  I ask myself every day, how did that happen? We had changed doctors when our primary care physician retired unannounced, and then changed again when the doctor to whom he had bequeathed us as patients ordered a plethora of …

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The Answer to “What’s New?”

I’m often at a loss for words when someone asks me “What’s new?” My brain seems to hesitate and hit a pause button, and I search through the now-in-dissaray recorded memory files, trying to remember when I last spoke with this person … what have we already talked about … I don’t want to be …

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Balancing Happy Relief and Admitted Losses

I read comments on a closed page of Facebook ~ only members of the page can read it, so comments remain unseen by non-members. Reading them, one after another and all posted within a time span of two hours, from patients newly diagnosed and from those who have dealt with MS for years … well, …

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The Stages of Grief in a new Graphic Illustration

This is a graphic than I ran across at Facebook. I found it very validating to read through it and reflect on my passage through the depression that came with the diagnosis of Multiple Sclerosis eight years ago.  It may take some people less time to move through these stages, and it may take some …

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Saving a Facebook post I’d shared for MS Awareness Month

Who am I? How did I get MS? No one knows. Geography, lifestyle, genetics … infections, pollution … no one knows and so there is no ‘cure’ … just questionable meds. I’m posting this brief description of MS for March’s MS Awareness Month: Here’s the ‘maybe why’ of MS: Hyperhidrosis from age 2 through age …

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Missing Those Who are Lost

I learned today on Facebook that a woman I’d never met face to face died of a massive heart attack. Her name was Faye, and I came to know her long after she had come to know me.  Four years ago, I opened my first website, Beyond Old Windows. It is a place where I …

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Another New Normal

The “New Normal” is a buzz word on social media sites for people with chronic illness such as multiple sclerosis, cancer, Parkinson’s disease and more. The adjective ‘new’ is a critical component of this expression, as there is little stability or consistency in any of these changed statuses. My first experience with a new normal …

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An Update on the New Treatment

The dermatologist, whom I’ll call Dr. Williams in my new book, recommended a new treatment for the Actinic Keratosis on my forehead (commonly called AK, and considered a pre-cursor of cancer.)  Normally, he would use cryosurgery: squirts of liquid nitrogen that freeze the skin cells, resulting in their falling off after blistering and scabbing over. …

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Findings

They say as we age, our old memories are more easily retrieved than those of a few moments ago. I have found that to be true, but rather than blaming old age, I attribute it to MS (which seems unfair, as I continue to deny this diagnosis, but I’m human, and flawed.) More than a …

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Heat Wave

I do not like the heat. When my younger sisters would invite me to go to the sunny beach on the coast of New Hampshire, I would decline, finding any excuse available to avoid the sun, the heat, the crowds and the traffic in the parking lots. They thought of the beach as Heaven, and …

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