A Collection of Others’ Words about My Story

This is my sixth book, and the one that has received reviews from many people who share the diagnosis of multiple sclerosis.

I wrote this book as a discovery draft, finding a focus gradually as I added chapter to chapter. I would describe it as part biography, part family/relationships, and part medical narrative. It evolved on a writers’ shared workshop site known as FanStory.com, where writers post their work and are critiqued by other writers, who in turn read and review each other.

This is my story, a story of a middle aged school teacher / wife / mother/ daughter / sister … all roles involving caring and a fair amount of energy. It is the story of an unexpected diagnosis and a treatment that exceeded my professional skills. As I explain in the book, I am not a nurse nor a doctor, but I am a professional teacher with skills and goals.

This is not your typical “I have MS but MS doesn’t have me” story; I found it difficult to celebrate the modern treatments for this diagnosis. I’ll leave it to you to decide how you might have chosen if faced with the same.

Multiple Sclerosis, an Enigma

Merita King‘s review, in the UK

Dec 11, 11 Five Stars

Read in December, 2011

This book is a clear account of the author’s own experiences. Terry takes us through each step of her journey in a detailed and straightforward way, without the ‘pity me’ overtones that such books so often contain. During the course of reading this book I felt that I really came to know Terry in quite a personal way, and that I like her for her strength and no nonsense attitude to her experience. She describes in plain detail each step on her journey through diagnosis and treatment and you cannot help but feel her frustration alongside her as she deals with each new crisis as she fights to find a way of coping that feels comfortable for her.

Anyone going through their own journey with MS will find an immediate connection with Terry. Her story can only serve to help others going through similar experiences who may be lost and anxious and frustrated at the lack of empathy displayed by the medical fraternity. Those who have loved ones with MS will find this book a valuable resource in helping them towards a closer understanding of those they live with and look after.

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Five out of five stars: A Must Read for MS patients, families and friends, January 16, 2012

By

Terry M. PriceSee all my reviews

This review is from: Multiple Sclerosis, an Enigma: Finding a diagnosis but not a cure (Paperback)

Wow, this was an amazing book…

At this moment, I’m sitting here stunned.
Stunned because I’ve finally received answers I’ve needed for the longest time.
Stunned because I’ve connected to another soul with many of the strange, uncommon symptoms I’ve experienced, some since childhood.
Stunned because
I no longer feel alone with the monster known as MS…

This lady’s story could be mine, or one of many others. She has successfully put into words, the things we wish we could say about the struggles associated with MS, but oftentimes, cannot express through mere words.

Mrs. Palardy has written an honest, painful, at times heartbreaking account of her journey through life, MS, and the assortment of medical testing and treatments. She has faced the issues in her life head on with courage, strength and personal fortitude. Terry is by no means a victim, but a slayer of this dragon. Her husband, a true knight in shining armor, stands strong by her side, supporting her, facing everything this ugly disease can throw at them.

This is an honest, important, inspiring, empowering book, which will help anyone with MS, and will bring knowledge and a deeper understanding to the loved ones and friends of those with the disease.

Thank you Terry for this gift you have given. Your story and courage has made a difference in my life.

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Susanna Mahoney‘s review

Jul 04, 12

Read in June, 2012 Five Stars

This story is a honest look inside the world of a multiple sclerosis patient and woman trying to adjust to the MonSter.It is a good beginner’s guide about plotting through the world of auto immune diseases. She is honest and refreshing sharing her thoughts with the readers and tells the pros and cons of this vague disease. She has a strong support system and knows how to advocate to the physicians for the treatment all ill individuals deserved. I like the upbeat positive attitude she is developing along her journey to transform her life from a Type A personality to a mellow lady with an I do not care attitude who lives for each day.

She was brave enough to put in the Almighty’s hands and release herself from Western medication and look for a better approach to deal with the symptoms of loss muscle and cognitive capabilities. She explains how it affects her and her husband and the adjustments they made to learn how to dance and not be furious with the personal storm some of us experience every day. Kudos for sharing your experiences and trials with others who might have just received the news “You have MS”. This is a good book to start to come to terms with the diagnosis of any autoimmune condition.

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Carmen Ambrosio‘s review

Mar 28, 12

Read in March, 2012 Five Stars

Bookended by the challenging generational demands of growing children and seriously ill elderly parents, dedicated educator Terry Crawford Palardy put everyone else’s needs before her own for years–even as she experienced perplexing neurological symptoms.

Fluid dialogue and vivid descriptions reveal the author’s protracted, diagnostic odyssey. Readers share alongside Terry the physical and emotional toll of getting to and through physician consultations, diagnostic procedures, tests, and treatments. The escalating frustration, confusion, and fear she feels when she interacts with certain medical, pharmaceutical, and insurance company staffers may be familiar to others who have a chronic illness or their caregivers.

Finally, Terry connects with doctors she trusts. A once elusive MS diagnosis becomes definitive. Throughout her ordeal, Terry resolves to preserve her dignity. She is bolstered both by her religious faith and by her husband’s consistently calm, reassuring presence. His devotion to her is the embodiment of unconditional love. Despite losses and lingering unanswered questions, Terry remains true to her conviction to decide treatment options for herself.

When I finished the last chapter, I applauded Terry’s determination to deal with multiple sclerosis on her own terms. It was a rousing ovation I hoped somehow she could hear.

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Carol‘s review

Jan 13, 12 Five Stars

Recommended to Carol by: Ms Palardy’s review

Recommended for: Anyone who has MS

Read in January, 2012, read count: once

Read your book and I have so many mixed emotions at the moment. Tears came to my eyes more than once. Terry you are such a courageous woman. All the trials and tribulations that were endured by both you and your husband are unbelievable. You stayed true to yourself throughout and never ever gave up. Never once did you forget about your students and the obligation you had to them as their teacher. This is excellent account of how MS can control one’s life if you let it but once you begin to understand it’s invasion adjustments may become acceptable. Wish I could have given a much higher rating, it deserves much more. For those whom have MS (Or knows someone with MS), I urge you to purchase this book.

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Shane Cormier‘s review

Mar 25, 12

Five Stars

I entered this contest for my aunt. It took her a while to read it because of her condition but she finally emailed me to tell me what she thought. She wanted me to thank the author for allowing me to win this and that although she is in really bad shape, she said it gives her hope. I believe that she is going to be trying some of the steps that Terry took and will run some by her doctor as well. And she said she is going to start a journal to occupy her mind. Tv is getting old she said. All those channels and nothing to watch. LOL Her words Not mine. Sorry it took so long Terry. And thanks for the book. It put a smile on my aunts face and gave her some hope.

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5.0 out of 5 stars A book for anyone with a disease without a cure., January 19, 2012

By

Othniel J. Seiden “Otti” (Denver) – See all my reviews
(REAL NAME)

This review is from: Multiple Sclerosis, an Enigma: Finding a diagnosis but not a cure (Paperback) 

This book is a must for anyone with MS or a friend or family member of a MS patient. It gives insight into the everyday tribulations of this disease, but it is also a valuable book for anyone with a disease which has no cure and tends to be progressive, for it is a book that not only tells about MS, but how one brave person faces the hardships and frustrations of having such an illness. Being an MD I would highly recomend this book to patients suffering one of several such diseases.

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5.0 out of 5 stars A love story in comparison to no other…., April 8, 2012

By

Liset “liset” (Miami, Fl) – See all my reviews

Amazon Verified Purchase(What’s this?)

This review is from: Multiple Sclerosis, an Enigma: Finding a diagnosis but not a cure (Paperback) 

This book took me so many places. It reminded me when a family was not just man and wife but ALL of them family as I was raised and is so forgotten in today’s day and age. We live in a time and space where inconvenience is swept under the rug and when there is too much clutter under the rug heck throw out the rug and get a new one. This love story is real commitment to parents, brothers and sisters, children and how the Palardy’s lived their lives; putting themselves last but each other before the other.

As I was reading the story and I could feel Terry’s frustration I have known it so many times during the terrible years of diagnosis then follow ups and appointments, relentless arguing with Insurance companies and then finding out not to be covered for a particular treatment or medication. There is a moment in the book when the author is going through all of this and she hands the phone to her husband Rick and he takes over from there and you just think; he most definitely is her knight in shining armor.

I would highly recommend this book to any one facing possible MS diagnosis or a family member or caretaker. It is also a great guide, spiritual awakening and support for those facing tough decisions about elderly care and real hard questions and answers to different care options that this family has to go through with both sets of parents.

Overall and more so than any of the things I mentioned above it is a love story. It is a story of commitment made between two people when they were young, vibrant and full of life to their resolve to any obstacle that crossed their path and they triumphed over. Not a triumph of a finish line but a resolute triumph of life, real life not the white picket fence with sugarplum cookies but the real life and burdens that we tackle everyday some try to sweep that “real life” under the bed, others turn around and sprint the other way, others like Terry and Rick sing a melody that only two heart as synched as theirs could dance to; it is in my opinion a true love story.

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5.0 out of 5 stars Much more than expected…, January 16, 2012

By

DPSee all my reviews

This review is from: Multiple Sclerosis, an Enigma: Finding a diagnosis but not a cure (Paperback)

This brief book is much more than the title suggests. It is a love story, a family drama, an ode to having old school work ethic, and a moving description of dealing with chronic illness. Terry Palardy has put into print many of the experiences shared by people with a chronic illness: anxiety filled tests to determine diagnosis and progression, managing schedules and multiple doctors, maintaining personal standards at work and at home and the heart wrenching conversations trying to make sense of it all. Those who recognize themselves in her words will find the comfort of shared experience but equally important is the potential impact it may have in helping family and friends understand as well.

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5.0 out of 5 stars Multiple Scerosis An Enigma, April 30, 2012

By

Paul JansonSee all my reviews

This review is from: Multiple Sclerosis, an Enigma: Finding a diagnosis but not a cure (Paperback)

I found this a very illuminating story. A very personal account of disease, disability, and the failure of the medical system to be able to deal with it. There are a great many diseases, and people in this same situation who would find this helpful.

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5.0 out of 5 stars Multiple Sclerosis, an Enigma, March 29, 2012

By

FayeSee all my reviews

Amazon Verified Purchase(What’s this?)

This review is from: Multiple Sclerosis, an Enigma: Finding a diagnosis but not a cure (Paperback)

Amazing! As I read along, I felt I was walking right beside her. In the story you could see that she was sticking to her recollections of symptoms throughout her life starting at an early age. And as I stated to her, I wonder also, were her family members misdiagnosed and had MS as well. We will never know. I felt comfortable walking beside Terry through her journey as I felt she had my heart in hand. I admired her for many years, but now is “special” to me! Quite brave to share such intimate details along this struggle we all experience in the Dragon of MS.

I recommend to all with MS and friends/family of someone suffering from MS!

Beautiful Read!

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5.0 out of 5 stars An important novel, March 16, 2012

By

Lauren DuBois (France) – See all my reviews

This review is from: Multiple Sclerosis, an Enigma: Finding a diagnosis but not a cure (Paperback)

Terry’s memoir is a story of courage and hope. It’s so well-written that I feel I know the author personally. She writes of her life which was interrupted with the diagnosis of multiple sclerosis – a debilitating disease.
It’s important for anyone who is newly-diagnosed or for family members, caregivers, friends to read this novel and get a good understanding of how MS can shake up a person’s life.
Kudos to Terry for writing and sharing her innermost thoughts on her disability.

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4.0 out of 5 stars Going Forward Together, June 15, 2012

By

G. HillSee all my reviews
(REAL NAME)

Amazon Verified Purchase(What’s this?)

This review is from: Multiple Sclerosis, an Enigma: Finding a diagnosis but not a cure (Paperback)

Terry Crawford does an exceptional job humanizing all of the aspects of diagnosis from the perspective of the patient. Is this the correct diagnosis? What about other diseases with similar symptom profiles known to run in the family? While dealing with all of those issues, her story simultaneously describes the impact of MS in our society where definition is so often derived from profession. Her story is one of a school teacher not wanting to take time off, even to deal with her own health issues. How many of us want to leave a job seen as a vocation? How do we make the decision to do so? Then what do we do next?

While I have read many stories recounting the doubts of diagnosis when it comes to MS, I think this book could justifiably be thought required reading for spouses of patients dealing with uncertain chronic medical conditions. While the book doesn’t overly dwell on this aspect, that makes it strike exactly the right balance. He is always there supporting when needed in words, deed, and some times just silent support. This book would be a very good book for a couple to read as they come to grips with what MS may mean.

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5.0 out of 5 stars Not just for MS patients and families, April 27, 2012

By

Cincy Yankee “georgetownroyals”See all my reviews

This review is from: Multiple Sclerosis, an Enigma (Kindle Edition)

In “MS: An Enigma,” author Terry Palardy takes a reader along with her through the process of her MS diagnosis. This book, however, is not just for MS patients and their families, and it’s not just a list of medical tests. Readers will relate to many of the author’s experiences: childhood memories, combining work days with family and illness responsibilities, and caring for aging parents. Terry’s writing style is easy to follow, and the book is well-edited. I read the ebook edition, and was happy to find the pages well-formatted.

From the first chapter of the book, Terry is completely transparent with her readers, inviting them to share the emotion and frustration of the moment. She also shares the support she receives from her husband, Rick. The author does not separate descriptions of the illness and treatment from her daily life, and instead tells a story.

In this book, it’s clear that a diagnosis is not an event with a date that can be marked on the calendar, but rather a series of moments that begin early in life. Terry begins with moments in her childhood, and her writing is engaging as she creates in herself and her family complete characters for us to follow. Rather than simply list medical tests she was subjected to, she tells the story of how the test impacted her work day and how the constant interruptions affected her emotions. A careful description of her MRI experience will encourage anyone about to go through the same test.

Terry ends her story with a treatment experiment, and I hope she revises the book at some point to include her results. As the author is about the same age as my own mom, I was also looking for her experiences telling grown-up kids about her diagnosis and their reactions–but perhaps that is a story for them to write.

True to her academic roots, Terry ends the book with a section of reliable resources readers can turn to for information about multiple sclerosis, along with a list of online forums readers can go to for a community of encouragement.

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5.0 out of 5 stars Medical Trials Framed in a Loving Family Portrait, April 4, 2012

By

Tracy A. Todd “HotToddy” (San Francisco, CA USA) – See all my reviews
(REAL NAME)

Amazon Verified Purchase(What’s this?)

This review is from: Multiple Sclerosis, an Enigma: Finding a diagnosis but not a cure (Paperback)

As avid readers know, the quality of books in the literary landscape has changed, but Multiple Sclerosis, an Enigma by Author Terry Crawford Palardy renews our appreciation for the written word. Author Palardy skillfully composed a well-written book and conveyed a story of compassion and resilience for her respected readers.

As a former teacher herself, Author Palardy did not ask the reader to overlook typos, or disregard poor sentence structure. Instead, the book is a well-formatted, fluid glimpse into the sometimes challenging, always endearing family she so eloquently introduces to us.

We learn who the self-described author and her family are, not by what she says, but by what they do. She doesn’t tell us within quotes, that she and her spouse love their parents instead she tells us that they visited them daily, sacrificed their own finances, yet continue to smile when visited by a memory of their now dearly departed parents. Her wonderful husband doesn’t spout I love you’s either, rather the author tells us that he carries her purse without hesitation. In addition, she doesn’t ‘tell’ us that she’s a dedicated teacher, but she tells the willful doctor that she’s happy to see him…anytime outside of school hours. We experience the compassion and commitment that exists within this family from the deeds so proficiently, yet humbly described.

Yes, there is talk of doctors, diseases, diets and medications, but it’s framed so very well in a magnificent family photo.

Multiple Sclerosis, an Enigma, is a story of unconditional love shared over decades between generations of two families joined by a marriage strengthened from reverence to their marital vows.

It’s a worthy investment for the serious reader who will immediately share this title when asked, “Have you read any good books lately?”

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Sept. 19, 2012
Five Stars from Philip Nork Jr., Nevada USA

I just finished MultipleSclerosis, an Enigma by Terry Crawford Palardy and am sitting at my desk in a fog. This heart-felt memoir of a person diagnosed with MS and her battle to live a “normal” life has me re-thinking my own life.
The courage displayed, along with the confusion as to why, was portrayed brilliantly. As I read it, I felt like I was sitting with the author at a table or on a front porch, sharing a beverage, as she told me her story.
There were times I laughed and cried while in the pages of this book. It also took me back to the days when my grandparents were in the same situation … a different disease, but the same situations.
The author says, “Water doesn’t try to choose a direction … it just follows the water before it, rushing over the same rocks that were submerged in high water and exposed in drought last year, and ten years ago, and maybe fifty years ago. Nature is content to follow its established route. Only when man intervenes does the direction of the water have to change, finding and following new paths. Sometimes, the stream is strong enough to return to its own, natural path, to the dismay of those who had built in its original path.”
I take this to mean that nobody knows what is in store for them in this thing we call life. We can try to change the course of events by medicine or other things that the “professionals” prescribe, but the best things we can do is accept what fate delivers and deal with it in our own special way.
This book can help those diagnosed with diseases they don’t understand by letting them know they’re not alone. But at the same time, it can help those who are healthy by letting them into the “secret” life others may be in.

I am so glad I read this book.

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